Gaining Treatment, Finding Hope

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Truth is rarely kind: its demands are endless; its rewards offer few comforts; and it seems best to simply… ignore it. Fantasy — however hastily cobbled — is deemed the easier alternative, offering relief for those who need it most.

And this is the philosophy that guides many infected with the Human Immunodeficiency Virus (more commonly called HIV). There is no cure for this disease. There is no way to defeat it. And many assume that treatment therefore is a waste of time and dignity.

As of 2011, almost one percent of the total global population suffers from HIV. It’s estimated that half of those individuals don’t receive the necessary treatment — whether from a lack of awareness of their conditions, fear of social prejudice or even a dismissal of accepted medications. The causes are many, but the result is always the same: death.

The established protocols for HIV involve Highly Active Antiretroviral Therapy — a carefully measured combination of prescriptions, each meant to counter the effects of this illness. Over 40 percent of those diagnosed with this disease don’t receive them within early stages, however (and many take none at all). It’s believed that such treatment offers no rewards. There is no cure and medicine is then considered a failure.

It’s instead a value, however. Those who receive treatment have their lives extended by over 60 percent — gaining years instead of losing them. Death rates nearly triple among those left unaided; and the lack of Antiretroviral Therapy generates more debilitating symptoms.

It’s essential to accept treatment. Refuse the assumptions and battle the disease instead.

Disease Prevention: Aids

In today’s technologically advanced world, HIV or AIDS is not nearly as dim a diagnosis as it was just 20 years ago.  Still, it is a scary and deadly disease.  SO many people all over the world carry this disease and with the ease of transfer of the disease, it is just as important now as it ever was to learn about this type of disease prevention.  Here is a basic list of methods to prevent diseases from infecting you.

  • The most well known method is to practice safe sex.  With this method of prevention, abstaining from sex completely until married is the safest option, but if that is not going to happen, condoms and birth control are the next best thing.  Condoms should be used even during oral sex.
  • Avoid sharing needles.  If you have to use needles for any reason, always use sterile needles that come from a source that is trusted.  The needles should be sealed and if they are open at all, dispose of them completely.
  • Wash your hands often.  It is not always obvious when you may have touched infected blood.  Maybe an infected person had a cut on their hand and then went grocery shopping.  If you touch something that they got their blood on and then in turn cut yourself, you might become infected as well.  This sounds extreme, but you can never be too careful.  You should wash your hands often for many reasons, not just worry over disease prevention.  It has never been so important to utilize disease prevention techniques.

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COPYRIGHT INFORMATION

ARIC, Inc. Copyright Statement

PAGE DESIGN/GRAPHICS — The page designs, elements, and graphics used in ARIC’s AIDS Medical Encyclopedia website are © copyright 1998 by ARIC, Inc., and are property of ARIC, Inc. Use of page designs, elements, and graphics is prohibited without written permission. Contact information on ARIC appears below, at the end of this document.

CONTENT — The majority of the informational materials used in the ARIC’s AIDS Medical Encyclopedia website originate from sources other than ARIC, Inc. Wherever possible, these sources are specifically named and a hyperlink to their website (if one exists) is provided in notes accompanying each page (or section).

Except where specifically noted as being original works by ARIC staff, materials held on this site should be considered the sole legal property of their copyright holders: the original publishers, writers, and/or artists (as appropriate). Persons wishing to re-use or re-distribute these materials, in any form or for any reason, must contact the copyright holders and obtain their permission to do so before they proceed.

In some cases, informational materials held on this site may be the work of members of ARIC’s staff. For example, except where specifically noted, all entries in this site’s Glossary of AIDS Medical Terms are written by ARIC staff members; these entries are updated versions of the entries contained in our group’s primary print publication, ARIC’s AIDS Medical Glossary. Please note: these works by ARIC staff are © copyright by ARIC, Inc. and are the property of ARIC, Inc.

Use of Encyclopedia Materials

The sources of the materials held here are largely AIDS information services and publications that have open policies on re-use and re-distribution of their materials. In general, those policies hold users to the following conditions:

  • the use should not be for profit or commercial gain of any kind;
  • full contact information for the original source publication/group should be provided;
  • the information should not be edited or altered.

ARIC also asks anyone who wishes to use the materials held on this site to observe the following additional conditions:

  • the original publishers/authors should be notified of your use of their materials (Note: it is not necessary to notify ARIC as long as the use is not for profit);
  • each page of the materials should contain the following statement:
    Source: AIDS Research Information Center; for more information, call or visit our AIDS Medical Encyclopedia website at:
    [Note: If the information is distributed in electronic form, the website address should be made into a hyperlink to this Encyclopedia website, if possible.]

As long as all of these conditions are met, the use and/or redistribution of materials on this site is allowed. Anyone wishing to use these materials for commercial purposes or for any purpose other than that described above must contact ARIC for written permission. See below for full contact information.Our Use of Materials from Other Groups

Our use of the materials posted to this website is intended to be for informational purposes only, to inform and empower People with HIV. We feel it is important for the lay patient with HIV to very clearly understand the complex processes of HIV infection and disease, and we have chosen these materials because we feel these materials do the best job of accomplishing this difficult goal. We have tried our best to uphold both the letter and spirit of liberal copyright requirements of these organizations by scrupulously acknowledging the author(s) and/or source publication(s) of each item wherever possible, by keeping the information intact wherever possible, and by including a list of links to sources used in the Encyclopedia. We strongly urge and encourage all interested readers to visit and utilize these source organizations and publications by following these links.

We trust that all original publishers of any materials used here will take note of these indications of good faith, and will forego any copyright dispute and allow our continued use of these materials, since this use is not for commercial gain or profit, but for informational purposes only, and is offered for the common benefit of all parties involved. However, if any publisher (or author) feels strong objections to our use of their material in the Encyclopedia, they need only contact ARIC and we will immediately remove their materials from our website.

Contact Information on ARIC

Additional information on ARIC, Inc. beyond that offered on this website is available on the ARIC, Inc. Homesite. Please feel free to visit this site and view the more complete information on ARIC held there. You may feel free to contact us by telephone, FAX, mail or E-mail if you have any additional questions.

AIDS Research Information Center, Inc.

Disclaim

ARIC AIDS Medical Information Services (AMIS)
GENERAL MEDICAL DISCLAIMER

ITEM I. ALL materials published or provided by ARIC, Inc. and its AIDS Medical Information Services (AMIS) are for the purposes of information only! This includes (but is not limited to) information contained in any ARIC public communication in any medium including print, electronic, hypertext, and film, and information given out via mail, E-mail and telephone contacts with ARIC clients and supporters. The information provided by ARIC, Inc. is intended to provide a framework of knowledge within which HIV positive persons, in partnership with their primary care physicians, can begin to build a coherent and effective plan of medical care and treatment for HIV infection and its sequelae. ARIC’s often-stated public mission is “patient empowerment through information;” that is: by providing basic information to People with HIV/AIDS, we hope to empower them to form a partnership with their doctors in making informed decisions about their own personal medical care. We do so because we honestly believe that patients empowered in this manner and cared for by experienced, responsive, and dedicated physicians have the very best chance of long-term survival in HIV infection with the highest possible quality of life. Recent studies have only served to verify and strengthen this belief.

However, information published or provided by ARIC, Inc. is not to be considered medical advice of any kind! ARIC, Inc. is strictly and only a provider of basic factual information on the medical treatment of HIV infection and related medical research. We are not, and do not claim to be, medical authority of any kind!

The state of general medical knowledge of this viral infection changes rapidly! While we make every reasonbable effort to provide medically accurate information, and to have that information independently reviewed for medical accuracy by qualified physicians experienced in the treatment of HIV infection before it is released, the possibility still exists that our information may be outdated! What may be “good” and timely information when we go to press (or upload to our Websites) can become outdated within a very short period of time. We therefore caution all readers to ALWAYS CHECK WITH YOUR DOCTOR(S) FOR CONFIRMATION AND GUIDANCE before attempting to utilize in any way any medical information found on any of our AIDS medical information websites or within any document posted to any of these websites, and within any public or private communication sent by volunteer staff of ARIC by any means, including telephone, FAX, mail, or E-mail, that are made as part of our AIDS Medical Information Services (AMIS) Hotline service.

As a matter of fact, the same holds true for AIDS medical information gathered from any other source as well: it’s just a good idea, regardless of where the information comes from, to bring it to your doctor(s) and have them confirm it. If your doctor(s) are aware of the information they will be able to confirm if the information is correct. And if they are not aware of the information, then there is certainly nothing to lose (and possibly much to be gained) by making them aware of it.

Responsibility for the PROPER use of the information provided by ARIC and/or its volunteer staff rests entirely and solely with the individual user. Neither ARIC, Inc., nor any of its staff or Board of Directors, nor any person whose work appears in any ARIC publication in any medium, may be held liable for damages of any kind resulting from the inappropriate use/misuse of this information. Such “inappropriate use/misuse” is hereby defined as:

“…any use or action of a medical nature that is NOT undertaken in cooperation with, upon the expressed advice or agreement of, and/or under the direct supervision of, an appropriately trained, fully qualified and legally licensed (US) medical practitioner.”

What that means, in English, is this: You cannot hold us liable for injuries you receive as a result of using the information we provide. We require that you bring what you learn at ARIC to your doctor(s). We encourage you, as a patient, to discuss new ideas with, and ask questions of, your doctor(s). When you do that, you become a partner in your medical care with your doctor, and your treatment (and any injury resulting from it) then becomes the doctor’s sole responsibility, as it certainly should be. If you do NOT do that, then you are MISUSING the information we provide, and WE ARE NOT RESPONSIBLE FOR SUCH MISUSE.

In all medical matters, we STRONGLY urge readers to always consult a qualified, licensed medical doctor of your choice, and to follow that doctor’s advice closely. Ideally, you should choose a physician with extensive experience in the treatment of HIV infection and AIDS, and should look upon this person as your friend and ally in the implementation of all medical treatment. A good doctor-patient relationship is essential to successful medical care, especially in a disease like AIDS*.

If, for any reason, your doctor does not agree with the information obtained from ARIC, you should ALWAYS follow your doctor’s advice instead. NEVER attempt to medicate yourself under ANY circumstances. ALWAYS consult a qualified medical doctor on proper medical care for any condition, especially one as complex and changeable as HIV infection. If, for some reason, you do not agree with advice given to you by your doctor, you should by all means seek another opinion from a new and different physician. But you should NEVER attempt to medicate yourself without the guidance and advice of an experienced and qualified physician ! ! !

ITEM II. In addition, it should be remembered that articles about AIDS medical treatments (or any aspect of medical care) appearing in this or any other ARIC publication do not imply endorsement of any medication, therapy, health care provider, or medical theory. By nature, a medical information service such as ARIC must remain neutral as far as personal preferences for one treatment over another are concerned. That neutrality extends to all writers whose articles appear in our publications. This does not mean that ARIC staff members do not have opinions on AIDS medical treatment matters. It simply means that as we publicly present information on AIDS medical care, we always give an even-handed and unbiased account of any and all AIDS medical treatments. ARIC volunteers always strive to fulfill this mandate to the best of their abilities in all public communications.

ITEM III. Finally, comments and/or opinions stated in any and all articles published by ARIC are solely those of their authors, and do not represent ARIC policy or opinions held by ARIC’s Board of Directors. When and where comments or personal opinions appear in ARIC publications, they are always identified as such and are clearly delineated from the body of factual information presented therein. In the few cases where articles appear to be unsigned, the reader may generally assume that the author is an ARIC volunteer, though this may not always be the case, and still should imply nothing whatever about ARIC policy in general or that of any organization whose informational materials appear as part of this or any other ARIC public communication. Likewise, it should further be understood that the appearance of an individual’s name or image in any ARIC publication is not meant to imply anything about the health status and/or sexual preferences of the individual so named or portrayed.

HOW TO USE THIS WEB ARCHIVE

OW TO USE THE AIDS MEDICAL ENCYCLOPED

Our AIDS medical information is arranged by topic. There are four general topic areas:

  1. HIV/AIDS and the Immune System
  2. Opportunistic Infections
  3. HIV/AIDS Treatments
  4. Glossary of AIDS Medical Terms

Each topic is further subdivided as per common useage. Within the subdirectories, each document is listed alphabetically by name (drug name, disease/organism name, term name, etc.) wherever possible. There are also two appendixes, which contain additional supporting information:

  1. Appendix I – Image Gallery
  2. Appendix II – Supporting Documents

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FIRST: Identify the problem clearly. Have you been diagnosed with an Opportunistic Infection? Are you having a particular problem like weight loss? The AIDS Medical Encyclopedia website is divided into separate general topic areas, each of which includes numerous documents giving useful information on that aspect of HIV infection. Find the area that contains the information you want.

SECOND: Once you know where to look, go to that part of the Encyclopedia website. Once there, you can browse at random, or do a keyword search (see also below). Once you’ve located the document(s) you’re looking for, you’ll find they offer basic information in layman’s language as well as links to further additional information either within the Encyclopedia website or elsewhere. At this point, you should PRINT A COPY of what you’ve found and READ IT CAREFULLY. THEN TAKE IT TO YOUR PRIMARY CARE PROVIDER(S). Talk to them about the information. Find out what they think and discuss with them how they may be able to use the information to improve your treatment. REMEMBER: TALKING TO YOUR DOCTOR is absolutely central to your successful health care! It’s YOUR BODY and you really do have a right to help your doctor decide what goes into it.

You can easily do keyword searches of the entire AIDS Medical Encyclopedia website at any time simply by going to the nearest Index page, always accessible through the link at the top left hand corner of every page. You can also search each documents using your own browser’s built-in search tool [usually the "Find (on this page)" command under the "Edit" menu item].

We have tried in every way possible to make the information here as easily understandable as possible. However, in spite of these efforts, there are bound to be instances where we use some medical term a reader doesn’t know. In instances where these terms are not already defined in context, the term will usually be hyperlinked to a corresponding definition in this website’s separate Glossary section. All the reader need do then is click on the blue-highlighted hyperlink, read the definition, and then hit their browser’s “BACK” button to return to the page they were reading. In those rare instances where a term is not defined in context and a hyperlink isn’t present either, the reader is still urged to check the glossary for the term. It should be there; if it is not, PLEASE contact us by E-mail to let us know! We will gladly respond by adding the term to our list of glossary definitions.

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We encourage any and all users to feel free to send us E-mail and let us know if you’re having any difficulties locating or understanding the information presented here.

Remember: Your comments and suggestions are ALWAYS welcome!

Remember, too, that this information is only an example of what is now available on AIDS through the Internet; you can do more investigating on your own, if you wish! There are literally hundreds of websites now providing useful medical information, and probably over a hundred sites offering high-quality AIDS medical information. For a comprehensive listing of these Internet AIDS resources, please see the AIDS links section of ARIC’s primary website.

If you have questions about entries in this Encyclopedia, or suggestions, updates, or feedback of any kind, PLEASE feel free to contact the HIV+ volunteers at ARIC, Inc. by mail, telephone, FAX, or E-mail at:

AIDS Research Information Center, Inc.

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Please feel free to copy and use the information in ARIC’s AIDS Medical Encyclopedia for personal information, to give to your doctor or to a friend with HIV, etc. But… DO NOT SELL IT, or include it in any publication that is sold, without written permission from BOTH ARIC, Inc. AND the original source of publication or author(s), if any. For more detailed information on the use of information posted here, please carefully examine our copyright statement.

Please also be absolutely certain to carefully read our Medical Disclaimer before attempting to use the information posted here!